Colorado’s medical marijuana group is honoring fallen hero Charlotte Figi on the anniversary of her passing with a digital profit live performance.
Headlined by the Avett Brothers, April 7’s Rock the RoC present may also embrace performances and appearances by Governor Jared Polis, Glen Phillips, Ruthie Foster, Graham Nash, Sarah Jarosz, The War and the Treaty, Jeffrey Gaines, Nora Brown, Molly Tuttle and Dr. Sanjay Gupta, the previous CNN character whose documentary made Figi a catalyst for medical marijuana coverage reform and CBD curiosity across the globe.
Figi was only a toddler when she appeared on CNN in 2013. She’d begun taking CBD oil extracted from a non-intoxicating pressure of marijuana a yr earlier to deal with her Dravet syndrome, a uncommon type of epilepsy that may trigger excessive seizures. Her household reported that CBD almost eradicated Charlotte’s seizures, and he or she finally not required a feeding tube to eat. The pressure from which Charlotte’s CBD oil was extracted was later named Charlotte’s Web, and the world’s fascination with CBD adopted shortly after.
Unfortunately, Figi was amongst these at greater danger in the course of the COVID-19 pandemic. Last March she was hospitalized due to what her household believed had been coronavirus problems, and her mom later introduced that Charlotte had passed away on the age of 13.
Just over two weeks after Figi’s demise, Governor Jared Polis issued an government order proclaiming that going ahead, April 7 will be known as Charlotte Figi Day in Colorado. To have a good time Charlotte’s life additional, a few of her previous associates wish to throw a pageant to profit the identical group that helped her household on their journey by medical marijuana.
The Realm of Caring basis, the group internet hosting the occasion, helped the Figi household be taught extra about medical marijuana and procure Charlotte’s drugs early on, and co-founder Heather Jackson maintains a friendship with the household right now. She was sitting outdoors the helicopter launch pad when Charlotte entered the hospital final March, unable to go to her throughout her ultimate hours due to COVID-19 protocols.
“I tried to see her through the window at the helipad, and let her know that someone was there. We were together as close as we could be through that,” she says. “Our families are still thick as thieves. To not have been able to connect through this last year has been very hard. That’s why this will be so healing.”
Jackson’s son, Zaki, additionally suffers from a uncommon type of epilepsy, and went from hospice to residing a comparatively regular life after utilizing medical marijuana and CBD oil. In the muse’s early days, Jackson and Charlotte’s mom, Paige, would repeatedly maintain bonfire gatherings for different medical marijuana sufferers and their households. To honor Charlotte, Jackson needs Rock the RoC to hold an identical vibe, even when the initially deliberate venue, Red Rocks Amphitheatre, wasn’t accessible to ebook in the course of the pandemic.
“Instead of meeting at Red Rocks like we planned, we’re basically going to have to create a movie,” she says, noting that her basis hasn’t been in a position to correctly honor Charlotte publicly due to the pandemic. “We haven’t had an opportunity to do that yet. This is also to continue the mission, continue to be there to answer the phone, continue giving grants to families.”
According to Jackson, the successes and heartbreak suffered by the Figi household are frequent of their group. When it involves associates who’ve misplaced their kids, she stopped counting at thirty. But whether or not it is serving to a baby stay a seizure-free life or making a stage-four most cancers affected person really feel comfy of their previous couple of months, the group retains going.
“You’re going to have to go through it no matter what, but the fact that you don’t have to do it alone can bring a better quality of life for that process,” she says.
Jackson estimates that Realm of Caring has given away round $3 million in medical cannabis merchandise and money since 2013. Viewers of the April 7 live performance can tune in without spending a dime, however donations might be made earlier than and in the course of the present. Realm of Caring can be looking for sponsorships from cannabis and native companies, and can launch a Kickstarter marketing campaign in March to additional help this effort. Artist Shepard Fairey has been commissioned to design merchandise for the present, as nicely, with all proceeds benefiting the muse, Jackson notes.
Learn extra about Rock the RoC and learn how to donate to the Realm of Caring on the show’s website.
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